TRISOMY 18

Awareness Wristbands

These Trisomy 18 Awareness Wristbands are made to honor the families who show great courage in the face of such great trials. They can be made with a custom message to honor and remember a specific person. They can also be worn to raise awareness of Trisomy 18 and the need for early testing.
We will work with you to create the perfect wristbands for awareness and memorials.

Design your own Trisomy Awareness Wristband

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About Trisomy 18

Trisomy 18, also known as Edwards syndrome, is a condition which is caused by a error in cell division, known as meiotic disjunction. Trisomy 18 occurs in about 1 out of every 2500 pregnancies in the United States, about 1 in 6000 live births.
The developmental issues caused by Trisomy 18 are associated with medical complications that are more potentially life-threatening in the early months and years of life. 50% of babies who are carried to term will be stillborn, with baby boys having higher stillbirth rate than baby girls.

Statistics

  • Trisomy 18, Edwards syndrome, occurs in around one in 6,000 live births
  • About 80% of those affected are female.
  • Trisomy 18 (Edwards syndrome) results from the presence of an extra copy of chromosome Trisomy 18 leads to severe intellectual and physical defects.
  • The prognosis of trisomy 18 is poor; half of those affected do not live beyond the first week of life and only 10% of infants with this condition live beyond the first year.
  • Common features of trisomy 18 include a low birth weight; a small jaw and mouth; an abnormally shaped, small head; overlapping fingers and clenched fists; and defects in the heart and other organs.
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Personal Stories

Families whose children are born with Trisomy treasure every moment.
We found out Abigail had Trisomy 18 before she was born, and we knew that she was meant to be a special blessing to us. We finally got to meet her in person on August 27, 2002. She gave us 5 days of cherished memories with her, then she went to be with Jesus on September 1, 2002. She was held in our loving arms virtually all of her earthly life; now she is being held in Jesus' loving arms for eternity.
After learning of their baby's diagnosis in June 2004, Johnathon and Crystal met with their doctors. They felt they wanted to carry to term, but after further research and many more meetings with a panel of doctors the learned that their son's chances for surviving were very low. Crystal said, "They listed all the problems Jordan had and, that is when my heart changed. I no longer wanted him to stay. I wanted his suffering to end and for him to live the life he was meant to live the life of an angel."

Trisomy Support Organizations

Trisomy 18 Foundation

Our Mission is to encourage the search for treatments and preventions of Trisomy 18, to educate and support medical professionals, and to create a caring worldwide community for affected families. We envision a world in future where Trisomy 18 is a preventable and treatable condition and all parents have access to compassionate, knowledgeable care that respects the humanity and potential of their child diagnosed with Trisomy 18.

Support Organization for Trisomy

SOFT is a network of families and professionals dedicated to providing support and understanding to families involved in the issues and decisions surrounding the diagnosis and care in Trisomy 18, 13 and other related chromosomal disorders. Support can be provided during prenatal diagnosis, the child's life and after the child's passing. SOFT is committed to respect a family's personal decision and to the notion of parent-professional relationships.

Trisomy Families

Trisomy Families Facebook Group: Networking, Advocating, Supporting, Uniting
What is Trisomy 18? CNN's report